Annals
Established in 1927 by the American College of Physicians
:
Advanced search
 
box Article
 arrow  Table of Contents                
space
 arrow  Full Text of this article Free
space
 arrow  Figures/Tables List
space
 arrow  Related articles in Annals
space
box Services
 arrow  Send comment/rapid response letter
space
 arrow  Notify a friend about this article
space
 arrow  Alert me when this article is cited
space
 arrow  Add to Personal Archive
space
 arrow  Download to Citation Manager
space
 arrow  ACP Search                        
space
 arrow  Get Permissions
space
box Google Scholar
 arrow  Search for Related Content
space
box PubMed
Articles in PubMed by Author:
  arrow  Tulsky, J. A.
space
  arrow  Arnold, R. M.
space
 arrow  Related Articles in PubMed
space
 arrow  PubMed Citation
space
 arrow  PubMed
space

ARTICLE

Opening the Black Box: How Do Physicians Communicate about Advance Directives?

right arrow James A. Tulsky, MD; Gary S. Fischer, MD; Mary R. Rose, MA; and Robert M. Arnold, MD

15 September 1998 | Volume 129 Issue 6 | Pages 441-449

Background: The quality of communication that leads to the completion of written advance directives may influence the usefulness of these documents, but the nature of that communication remains relatively unexplored.

Objective: To describe how physicians discuss advance directives with patients.

Design: Prospective study.

Setting: Five outpatient primary care medicine practices in Durham, North Carolina, and Pittsburgh, Pennsylvania.

Participants: 56 attending internists and 56 of their established patients. Eligible patients were at least 65 years of age or had a serious medical illness.

Measurements: Two raters coded transcripts of audiotaped discussions about advance directives to document how physicians introduced the topic of advance directives, discussed scenarios and treatments, provided information, elicited patient values, and identified surrogate decision makers.

Results: Conversations about advance directives averaged 5.6 minutes; physicians spoke for two thirds of this time. In 91% of cases, physicians discussed dire scenarios in which most patients would not want to be treated, and 48% asked patients about their preferences in reversible scenarios. Fifty-five percent of physicians discussed scenarios involving uncertainty, typically using vague language. Patients' values were rarely explored in detail. In 88% of cases, physicians discussed surrogate decision making and documents to aid in advance care planning.

Conclusions: Although they accomplished the goal of introducing patients to advance directives, discussions infrequently dealt with patients' values and attitudes toward uncertainty. Physicians may not have addressed the topic in a way that would be of substantial use in future decision making, and these discussions did not meet the standards proposed in the literature.

Author and Article Information
space

From Durham Veterans Affairs Medical Center and Duke University, Durham, North Carolina; and University of Pittsburgh Medical Center, Pittsburgh, Pennsylvania.
Acknowledgments: The authors thank Esther Shaw for computer support; Laura Siminoff, PhD, for expert advice on transcript analysis; Marcy Wilson for administrative support; and the 112 patients and physicians who graciously allowed us to observe them during a private moment.
Grant Support: By grant HFP82-008 from the Veterans Affairs Health Services Research and Development, grant 5-P60-AG11268 from the National Institute on Aging Claude D. Pepper Older Americans Independence Center, the R.K. Mellon Foundation, and the John A. Hartford Foundation. Drs. Arnold and Tulsky are Project on Death in America Soros Faculty Scholars, and Dr. Tulsky is a Robert Wood Johnson Generalist Physician Faculty Scholar.
Requests for Reprints: James A. Tulsky, MD, Health Services Research (152), Veterans Affairs Medical Center, 508 Fulton Street, Durham, NC 27705.
Current Author Addresses: Dr. Tulsky: Health Services Research (152), Veterans Affairs Medical Center, 508 Fulton Street, Durham, NC 27705.


Related articles in Annals:

Medicine and Public Issues
Electronic Patient-Physician Communication: Problems and Promise
Kenneth D. Mandl, Isaac S. Kohane, AND Allan M. Brandt
Annals 1998 129: 495-500. [ABSTRACT][Full Text]  

Letters
How Physicians Communicate about Advance Directives
Bruce Leff
Annals 1999 130: 781. [Full Text]  

Letters
How Physicians Communicate about Advance Directives
Jean R. Pascoe
Annals 1999 130: 781. [Full Text]  

Letters
How Physicians Communicate about Advance Directives
James A. Tulsky, Gary S. Fischer, AND Robert M. Arnold
Annals 1999 130: 781. [Full Text]  



This article has been cited by other articles:


Home page
J. Am. Med. Inform. Assoc.Home page
L. L. DuBenske, M.-Y. Chih, S. Dinauer, D. H. Gustafson, and J. F. Cleary
Development and Implementation of a Clinician Reporting System for Advanced Stage Cancer: Initial Lessons Learned
J. Am. Med. Inform. Assoc., September 1, 2008; 15(5): 679 - 686.
[Abstract] [Full Text] [PDF]


Home page
JCOHome page
A. Walling, K. A. Lorenz, S. M. Dy, A. Naeim, H. Sanati, S. M. Asch, and N. S. Wenger
Evidence-Based Recommendations for Information and Care Planning in Cancer Care
J. Clin. Oncol., August 10, 2008; 26(23): 3896 - 3902.
[Abstract] [Full Text] [PDF]


Home page
AM J HOSP PALLIAT CAREHome page
J. S. Alderman, B. Nair, and M. D. Fox
Residency Training in Advance Care Planning: Can It Be Done in the Outpatient Clinic?
American Journal of Hospice and Palliative Medicine, June 1, 2008; 25(3): 190 - 194.
[Abstract] [PDF]


Home page
ChestHome page
H. Shanawani, M. D. Wenrich, M. R. Tonelli, and J. R. Curtis
Meeting Physicians' Responsibilities in Providing End-of-Life Care
Chest, March 1, 2008; 133(3): 775 - 786.
[Abstract] [Full Text] [PDF]


Home page
J Aging HealthHome page
E. K. Porensky and B. D. Carpenter
Knowledge and Perceptions in Advance Care Planning
J Aging Health, February 1, 2008; 20(1): 89 - 106.
[Abstract] [PDF]


Home page
AM J HOSP PALLIAT CAREHome page
C. T. Bradley and K. J. Brasel
Core Competencies in Palliative Care for Surgeons: Interpersonal and Communication Skills
American Journal of Hospice and Palliative Medicine, January 1, 2008; 24(6): 499 - 507.
[Abstract] [PDF]


Home page
JCOHome page
A. K. Ganti, S. J. Lee, J. M. Vose, M. P. Devetten, R. G. Bociek, J. O. Armitage, P. J. Bierman, L. J. Maness, E. C. Reed, and F. R. Loberiza Jr
Outcomes After Hematopoietic Stem-Cell Transplantation for Hematologic Malignancies in Patients With or Without Advance Care Planning
J. Clin. Oncol., December 10, 2007; 25(35): 5643 - 5648.
[Abstract] [Full Text] [PDF]


Home page
AM J HOSP PALLIAT CAREHome page
Kara Zivin Bambauer and M. R. Gillick
The Effect of Underlying Health Status on Patient or Surrogate Preferences for End-of-Life Care: A Pilot Study
American Journal of Hospice and Palliative Medicine, June 1, 2007; 24(3): 185 - 190.
[Abstract] [PDF]


Home page
Arch Intern MedHome page
A. E. Volandes, L. S. Lehmann, E. F. Cook, S. Shaykevich, E. D. Abbo, and M. R. Gillick
Using Video Images of Dementia in Advance Care Planning
Arch Intern Med, April 23, 2007; 167(8): 828 - 833.
[Abstract] [Full Text] [PDF]


Home page
Arch Intern MedHome page
A. K. Smith, A. P. Ries, B. Zhang, J. A. Tulsky, H. G. Prigerson, and S. D. Block
Resident Approaches to Advance Care Planning on the Day of Hospital Admission.
Arch Intern Med, August 14, 2006; 166(15): 1597 - 1602.
[Abstract] [Full Text] [PDF]


Home page
J. Med. EthicsHome page
K L Rodriguez and A J Young
Perceptions of patients on the utility or futility of end-of-life treatment.
J. Med. Ethics, August 1, 2006; 32(8): 444 - 449.
[Abstract] [Full Text] [PDF]


Home page
AM J HOSP PALLIAT CAREHome page
J. Hallenbeck
High context illness and dying in a low context medical world
American Journal of Hospice and Palliative Medicine, March 1, 2006; 23(2): 113 - 118.
[Abstract] [PDF]


Home page
Arch SurgHome page
J. L. Bernat and L. M. Peterson
Patient-Centered Informed Consent in Surgical Practice
Arch Surg, January 1, 2006; 141(1): 86 - 92.
[Abstract] [Full Text] [PDF]


Home page
NEJMHome page
D. Casarett, J. Kapo, and A. Caplan
Appropriate Use of Artificial Nutrition and Hydration -- Fundamental Principles and Recommendations
N. Engl. J. Med., December 15, 2005; 353(24): 2607 - 2612.
[Full Text] [PDF]


Home page
JAMAHome page
J. A. Tulsky
Beyond Advance Directives: Importance of Communication Skills at the End of Life
JAMA, July 20, 2005; 294(3): 359 - 365.
[Abstract] [Full Text] [PDF]


Home page
ChestHome page
E. Knauft, E. L. Nielsen, R. A. Engelberg, D. L. Patrick, and J. R. Curtis
Barriers and Facilitators to End-of-Life Care Communication for Patients with COPD
Chest, June 1, 2005; 127(6): 2188 - 2196.
[Abstract] [Full Text] [PDF]


Home page
Arch Intern MedHome page
R. A. Pearlman, H. Starks, K. C. Cain, and W. G. Cole
Improvements in Advance Care Planning in the Veterans Affairs System: Results of a Multifaceted Intervention
Arch Intern Med, March 28, 2005; 165(6): 667 - 674.
[Abstract] [Full Text] [PDF]


Home page
Eur Respir JHome page
J.R. Curtis, R.A. Engelberg, E.L. Nielsen, D.H. Au, and D.L. Patrick
Patient-physician communication about end-of-life care for patients with severe COPD
Eur. Respir. J., August 1, 2004; 24(2): 200 - 205.
[Abstract] [Full Text] [PDF]


Home page
Arch Intern MedHome page
B. Lo and R. Steinbrook
Resuscitating Advance Directives
Arch Intern Med, July 26, 2004; 164(14): 1501 - 1506.
[Abstract] [Full Text] [PDF]


Home page
Arch Pediatr Adolesc MedHome page
R. G. Hartman
Dying Young: Cues From the Courts
Arch Pediatr Adolesc Med, July 1, 2004; 158(7): 615 - 619.
[Full Text] [PDF]


Home page
The OncologistHome page
R. T. Penson, K. J. Daniels, and T. J. Lynch Jr.
Too Old to Care?
Oncologist, June 1, 2004; 9(3): 343 - 352.
[Abstract] [Full Text] [PDF]


Home page
Palliat MedHome page
K R. Yabroff, J. S Mandelblatt, and J. Ingham
The quality of medical care at the end-of-life in the USA: existing barriers and examples of process and outcome measures
Palliative Medicine, April 1, 2004; 18(3): 202 - 216.
[Abstract] [PDF]


Home page
J. Am. Podiatr. Med. Assoc.Home page
J. M. Baruch
Informed Consent and Advance Directives
J Am Podiatr Med Assoc, March 1, 2004; 94(2): 198 - 205.
[Abstract] [Full Text] [PDF]


Home page
Qual Health ResHome page
A. J. Young, T. Ofori-Boateng, K. L. Rodriguez, and J. L. Plowman
Meaning and Agency in Discussing End-of-Life Care: A Study of Elderly Veterans' Values and Interpretations
Qual Health Res, October 1, 2003; 13(8): 1039 - 1062.
[Abstract] [PDF]


Home page
JAMAHome page
B. Lo
Answers and Questions About Ethics Consultations
JAMA, September 3, 2003; 290(9): 1208 - 1210.
[Full Text] [PDF]


Home page
ANN INTERN MEDHome page
D. L. Patrick, J R. Curtis, R. A. Engelberg, E. Nielsen, and E. McCown
Measuring and Improving the Quality of Dying and Death
Ann Intern Med, September 2, 2003; 139(5_Part_2): 410 - 415.
[Abstract] [Full Text] [PDF]


Home page
Nephrol Dial TransplantHome page
M. E. Ostermann and S. R. Nelson
Haemodialysis patients' views on their resuscitation status
Nephrol. Dial. Transplant., August 1, 2003; 18(8): 1644 - 1647.
[Abstract] [Full Text] [PDF]


Home page
Nephrol Dial TransplantHome page
M. E. Ostermann and S. R. Nelson
Haemodialysis patients' views on their resuscitation status
Nephrol. Dial. Transplant., August 1, 2003; 18(88): 1644 - 1647.
[Abstract] [Full Text]


Home page
JCOHome page
A. L. Back, R. M. Arnold, J. A. Tulsky, W. F. Baile, and K. A. Fryer-Edwards
Teaching Communication Skills to Medical Oncology Fellows
J. Clin. Oncol., June 15, 2003; 21(12): 2433 - 2436.
[Full Text] [PDF]


Home page
American Behavioral ScientistHome page
J. L. WERTH Jr. and D. BLEVINS
Public Policy and End-of-life Care
American Behavioral Scientist, November 1, 2002; 46(3): 401 - 417.
[Abstract] [PDF]


Home page
J. Gerontol. B Psychol. Sci. Soc. Sci.Home page
T. R. Fried, E. H. Bradley, and V. R. Towle
Assessment of Patient Preferences: Integrating Treatments and Outcomes
J. Gerontol. B. Psychol. Sci. Soc. Sci., November 1, 2002; 57(6): S348 - 354.
[Abstract] [Full Text] [PDF]


Home page
NEJMHome page
T. R. Fried, E. H. Bradley, V. R. Towle, and H. Allore
Understanding the Treatment Preferences of Seriously Ill Patients
N. Engl. J. Med., April 4, 2002; 346(14): 1061 - 1066.
[Abstract] [Full Text] [PDF]


Home page
NEJMHome page
D. E. Meier and R. S. Morrison
Autonomy Reconsidered
N. Engl. J. Med., April 4, 2002; 346(14): 1087 - 1089.
[Full Text] [PDF]


Home page
JAMAHome page
B. Lo, D. Ruston, L. W. Kates, R. M. Arnold, C. B. Cohen, K. Faber-Langendoen, S. Z. Pantilat, C. M. Puchalski, T. R. Quill, M. W. Rabow, et al.
Discussing Religious and Spiritual Issues at the End of Life: A Practical Guide for Physicians
JAMA, February 13, 2002; 287(6): 749 - 754.
[Abstract] [Full Text] [PDF]


Home page
J. Med. EthicsHome page
J. Richter, M. Eisemann, and E. Zgonnikova
Doctors' authoritarianism in end-of-life treatment decisions. A comparison between Russia, Sweden and Germany
J. Med. Ethics, June 1, 2001; 27(3): 186 - 191.
[Abstract] [Full Text] [PDF]


Home page
Arch Intern MedHome page
M. D. Wenrich, J. R. Curtis, S. E. Shannon, J. D. Carline, D. M. Ambrozy, and P. G. Ramsey
Communicating With Dying Patients Within the Spectrum of Medical Care From Terminal Diagnosis to Death
Arch Intern Med, March 26, 2001; 161(6): 868 - 874.
[Abstract] [Full Text] [PDF]


Home page
NeurologyHome page
J. L. Bernat
Plan ahead: How neurologists can enhance patient-centered medicine
Neurology, January 23, 2001; 56(2): 144 - 145.
[Full Text] [PDF]


Home page
Arch Intern MedHome page
D. L. Roter, S. Larson, G. S. Fischer, R. M. Arnold, and J. A. Tulsky
Experts Practice What They Preach: A Descriptive Study of Best and Normative Practices in End-of-Life Discussions
Arch Intern Med, December 11, 2000; 160(22): 3477 - 3485.
[Abstract] [Full Text] [PDF]


Home page
JAMAHome page
M. J. Silveira, A. DiPiero, M. S. Gerrity, and C. Feudtner
Patients' Knowledge of Options at the End of Life: Ignorance in the Face of Death
JAMA, November 15, 2000; 284(19): 2483 - 2488.
[Abstract] [Full Text] [PDF]


Home page
JAMAHome page
A. Meisel, L. Snyder, T. Quill, and for the American College of Physicians-American So
Seven Legal Barriers to End-of-Life Care: Myths, Realities, and Grains of Truth
JAMA, November 15, 2000; 284(19): 2495 - 2501.
[Abstract] [Full Text] [PDF]


Home page
JAMAHome page
T. E. Quill
Initiating End-of-Life Discussions With Seriously Ill Patients: Addressing the "Elephant in the Room"
JAMA, November 15, 2000; 284(19): 2502 - 2507.
[Abstract] [Full Text] [PDF]


Home page
CMAJHome page
B. Calam, S. Far, and R. Andrew
Discussions of "code status" on a family practice teaching ward: What barriers do family physicians face?
Can. Med. Assoc. J., November 1, 2000; 163(10): 1255 - 1259.
[Abstract] [Full Text] [PDF]


Home page
JAMAHome page
D. G. Larson and D. R. Tobin
End-of-Life Conversations: Evolving Practice and Theory
JAMA, September 27, 2000; 284(12): 1573 - 1578.
[Abstract] [Full Text] [PDF]


Home page
The OncologistHome page
W. F. Baile, R. Buckman, R. Lenzi, G. Glober, E. A. Beale, and A. P. Kudelka
SPIKES--A Six-Step Protocol for Delivering Bad News: Application to the Patient with Cancer
Oncologist, August 1, 2000; 5(4): 302 - 311.
[Abstract] [Full Text]


Home page
Arch Intern MedHome page
J. R. Curtis, D. L. Patrick, E. S. Caldwell, and A. C. Collier
The Attitudes of Patients With Advanced AIDS Toward Use of the Medical Futility Rationale in Decisions to Forgo Mechanical Ventilation
Arch Intern Med, June 12, 2000; 160(11): 1597 - 1601.
[Abstract] [Full Text] [PDF]


Home page
ANN INTERN MEDHome page
K. E. Steinhauser, E. C. Clipp, M. McNeilly, N. A. Christakis, L. M. McIntyre, and J. A. Tulsky
In Search of a Good Death: Observations of Patients, Families, and Providers
Ann Intern Med, May 16, 2000; 132(10): 825 - 832.
[Abstract] [Full Text] [PDF]


Home page
ChestHome page
H. S. Perkins
Time To Move Advance Care Planning Beyond Advance Directives
Chest, May 1, 2000; 117(5): 1228 - 1231.
[Full Text] [PDF]


Home page
ANN INTERN MEDHome page
J. A. Tulsky, R. Ciampa, E. J. Rosen, and for the University of Pennsylvania Center for Bioe
Responding to Legal Requests for Physician-Assisted Suicide
Ann Intern Med, March 21, 2000; 132(6): 494 - 499.
[Abstract] [Full Text] [PDF]


Home page
JAMAHome page
S. D. Goold, B. Williams, and R. M. Arnold
Conflicts Regarding Decisions to Limit Treatment: A Differential Diagnosis
JAMA, February 16, 2000; 283(7): 909 - 914.
[Abstract] [Full Text] [PDF]


Home page
CMAJHome page
J. F. Seely and B. M. Mount
Palliative medicine and modern technology
Can. Med. Assoc. J., November 1, 1999; 161(9): 1120 - 1121.
[Full Text] [PDF]


Home page
ANN INTERN MEDHome page
B. Lo, T. Quill, J. Tulsky, and for the ACP-ASIM End-of-Life Care Consensus Panel
Discussing Palliative Care with Patients
Ann Intern Med, May 4, 1999; 130(9): 744 - 749.
[Abstract] [Full Text] [PDF]


Home page
ANN INTERN MEDHome page
B. Leff
How Physicians Communicate about Advance Directives
Ann Intern Med, May 4, 1999; 130(9): 781 - 781.
[Full Text] [PDF]


Home page
ANN INTERN MEDHome page
J. R. Pascoe
How Physicians Communicate about Advance Directives
Ann Intern Med, May 4, 1999; 130(9): 781 - 781.
[Full Text] [PDF]




 Home | Current Issue | Past Issues | In the Clinic | ACP Journal Club | CME | Collections | Audio/Video | Mobile | Subscribe | Tools | Help | ACP Online 

Copyright © 1998 by the American College of Physicians.